Extra Hands for ALS Shortcuts:
Extra Hands for ALS
Extra Hands ProgramCommunityPublic AwarenessHow You Can Help





Volunteering With Extra Hands

ALS Family Registration

About Extra Hands for ALS
Frequently Asked Questions
What Is ALS?
Extra Hands In The News

Our Team
Board of Directors
Careers With Extra Hands

Where Your Donations Go

Privacy Policy

While information is the cornerstone of our ability to provide a high-quality service, our most important asset is the trust of Extra Hands participants. Keeping participant information secure, and using it only as our participants would want us to, is a top priority for us. Here then, is our promise to participants:
  1. We will safeguard, according to strict standards of security and confidentiality, any information participants share with us.

  2. We will limit the collection and use of participant information to the minimum we require to deliver superior service to participants, which includes advising participants about our services and other opportunities, and to administer our service.

  3. We will permit only authorized employees, who are trained in the proper handling of participant information, to have access to that information. Employees who violate our Privacy Promise will be subject to our normal disciplinary process.

  4. We will not reveal participant information to any external organization unless we have previously informed the participant in disclosures or agreements, have been authorized by the participant, or are required by law.

  5. We will always maintain control over the confidentiality of our participant information.

  6. We will tell participant in plain language initially, and at least once annually, how they may remove their names from mailing lists. At any time, participants can contact us to remove their names from such lists.

  7. Whenever we hire other organizations to provide support services, we will require them to conform to our privacy standards and to allow us to audit them for compliance.

  8. We will not use or share - internally or externally - personally identifiable medical information for any purpose other than as disclosed to the participant when the information is collected, or to which the participant consents.

  9. We will attempt to keep participant files complete, up to date, and accurate. We will tell participants how and where to conveniently access their information (except when we're prohibited by law) and how to notify us about errors which we will promptly correct.

E-mail

General questions:
info@extrahands.org

Planning or attending events:
events@extrahands.org

Volunteering:
volunteer@extrahands.org

Problems with our website:
tech@extrahands.org







Address, Phone, Fax

Extra Hands for ALS
36 Four Seasons Center
Suite 293
St. Louis, MO 63017

Tel: (732) 223-1602
Fax: (732) 223-0159







Contact us in: Boise | Dallas-Ft. Worth | Denver | Los Angeles | New England | New Jersey | Orange County | San Francisco Bay Area | St. Louis | Westchester

Copyright © 2002 - 2008 Extra Hands for ALS (except as noted) About UsContact UsPrivacy Policy
Donate Now ALS Family Registration Volunteering Help Us Today!